sts_lilongwe DDI-MWI-LL-MEIRU-STS-2015-v01 Malawi Epidemiology and Intervention Research Unit Estelle McLean Chifundo Kanjala Jacky Saul Keith Branson James Sanderson Dominic Nzundah 2020-05-08 Nesstar Publisher Version 1 (May, 2020) STS Hospital-level stroke surveillance in Lilongwe, Malawi: providing tools for evaluating interventions in hypertension and stroke in sub-Saharan Africa Lilongwe DDI-MWI-LL-MEIRU-STS-2015-v01 Professor Moffat Nyirenda Professor Mia Crampin Dr Alison Price Dr Beatrice Mwagomba Dr Olivier Koole Dr Jonathan Ngoma Dr Jack Etete Nesstar Publisher Wellcome Trust Sample Survey Stroke TIA (Transient Ischemic Attack) Malawi Malawi Individual Sample survey data Malawi Epidemiology and Intervention Research Unit Face-to-face [f2f] Lilongwe Malawi Epidemiology and Intervention Research Unit Karonga Prevention Study stsl_cons.NSDstat 172 27 Nesstar 200801 Malawi Epidemiology and Interventions Research Unit stsl_dimg.NSDstat 109 29 Nesstar 200801 Malawi Epidemiology and Interventions Research Unit stsl_dmed.NSDstat 164 93 Nesstar 200801 Malawi Epidemiology and Interventions Research Unit stsl_fup.NSDstat 124 62 Nesstar 200801 Malawi Epidemiology and Interventions Research Unit stsl_reg.NSDstat 179 29 Nesstar 200801 Malawi Epidemiology and Interventions Research Unit stsl_stsf_parta.NSDstat 169 212 Nesstar 200801 Malawi Epidemiology and Interventions Research Unit stsl_stsf_partb.NSDstat 168 92 Nesstar 200801 Malawi Epidemiology and Interventions Research Unit Diagnostics and Medication Diagnostic Imaging Follow-up Form Stroke Register Identification data Residence details Diagnosis on initial presentation to hospital (in OPD/casualty) Socioeconomic data Information about the stroke/TIA event for which the patient attended the Hospital Traditional Healer History of admission elsewhere Information about patient PRIOR to the stroke or TIA Patient’s abilities before the stroke (modified Rankin test) Previous Diagnosis(at clinic) with a TIA or stroke before this current TIA/stroke Anthropometric measurements Blood pressure measures at initial presentation level of independence the patient has NOW following a stroke or TIA Modified Rankin (After Had A Stroke) Patient Medical history before the stroke Medical history in 12 months prior to stroke Family history of stroke Cause Of Stroke According To Patient Tobacco consumption Alcohol consumption Indoor smoke exposure Summary of diagnostic tests and medication requested by medical staff Current medication Specialist medical care in hospital Medication Provided At Discharge Follow-up appointment schedule at time of discharge EXIT form Others Neurological Examination at Initial Presentation Blood test results ECG (heart rhythm) Lumbar Puncture Medication given Chest X-ray Echocardiogram (ultrasound of heart) Carotid Doppler imaging of carotid blood vessels in the neck Patient diagnosis? STS study staff: Identification data CT Scan Identification Current medication at time of follow-up for either failure to take up referral to KCH or 1 month Recurrent Events Ability at follow-up after a stroke Others Version Version 172 0 Study identifier Study identifier 172 0 Contact Number Contact Number 172 0 STSREG number STS registration number 0 0 Interview date Date of interview 172 Participant Interviewed Was participant interviewed? 172 0 0 No 62 1 Yes 110 8 Unknown 0 9 Missing 0 Reason Participant not Interviewed 62 110 1 Refused interview 0 2 Aphasic (no voice) 5 3 Too unwell 53 4 Dementia 0 5 Late ascertainment 3 6 Ascertainment after death 0 7 Not found 1 8 Other (specify below) 0 Sysmiss 110 Realtive Interviewed Was a relative interviewed? 172 0 0 No 27 1 Yes 145 8 Unknown 0 9 Missing 0 Reason Relative not Interviewed 27 145 1 Refused interview 1 2 Not present 2 3 Other 3 4 Patient interview only 21 Sysmiss 145 Case or Control Is the participant a case or a control? 172 0 0 Control 2 1 Case 170 8 Unknown 0 9 Missing 0 understand study I confirm that I haveread,orhavehadreadtome, information on the study. I have been given the information sheet to keep, I havehadtheopportunitytoaskquestionsand I understandwhy thestudyisbeingdone. I understandthatparticipationinthisstudyisvoluntaryandthatI would be freetowithdrawfrom thestudyatanytimewithoutmystandardmedicalcarebeingaffected. I understandthattheinformationgatheredaboutmewould be keptconfidential,andstoredina securearchiveinMalawi.I understandthatany researchanalysisorpublicationoutcomewould bebasedonanonymiseddata. 172 0 0 No 0 1 Yes 172 8 Unknown 0 9 Missing 0 Agree findings to be recorded including Neuorlogical I agree to have findings from my medical examination,including neurological examination, recorded. 172 0 0 No 0 1 Yes 172 8 Unknown 0 9 Missing 0 I agreetobe in this study and have my weight, bloodpressure and pulse measured for this study. I understand that any clinical and extra data obtained from investigations (including imaging at hospital) may be used for research. 172 0 0 No 0 1 Yes 172 8 Unknown 0 9 Missing 0 Agree to follow ups I agree to take part in follow-up that means I will be interviewed and have my blood pressure taken at the health clinic at 1-week and 1-month after my stroke/TIA 172 0 0 No 0 1 Yes 172 8 Unknown 0 9 Missing 0 Agree to be told abnormal results I wouldliketobetold about myweight, blood pressure and pulseresultsiftheyareabnormal. 172 0 0 No 0 1 Yes 172 8 Unknown 0 9 Missing 0 Agreefor researchers to check my record I agree for the researchers to check my medical record and record information relevant to my health condition (TIA/stroke). 172 0 0 No 0 1 Yes 172 8 Unknown 0 9 Missing 0 Agree to medical records being checked I understand that, I and other members of my household will be asked about personal information for ourselves and that answers are confidential. 172 0 0 No 0 1 Yes 172 8 Unknown 0 9 Missing 0 Agree for presonal informationn to be asked I understand our personal details such as name, phone number and household will not be revealed to people outside the project. 172 0 0 No 0 1 Yes 172 8 Unknown 0 9 Missing 0 Agree for data to be archived I understand that the information we provide may be archived by the project. 172 0 0 No 0 1 Yes 172 8 Unknown 0 9 Missing 0 Agree to results ot be published in anonymised form I understand that the information we provide may be used in publications, reports, web pages, and other research outputs in an anonymised form. 172 0 0 No 0 1 Yes 172 8 Unknown 0 9 Missing 0 Agree other researchers to have access in anonymised form I understand that other researchers may have access to this data only in a securely anonymised form. 172 0 0 No 0 1 Yes 172 8 Unknown 0 9 Missing 0 Staff code Recorder: 172 0 Entry by Entry by: 172 0 Updated by Updated by: 10 0 Entry Date Date of entry 172 Date updated Date updated 10 Verified Verified 143 29 0 No 3 1 Yes 140 8 Unknown 0 9 Missing 0 Sysmiss 29 version Version 109 0 study identifier study identifier 109 0 contact number contact number 109 0 stsreg number STS registration number 109 0 interview date 0 boabab number Boabab number 16 0 boabab number additional Boabab number additional 3 0 ct scan done Was a CT scandone? 109 0 0 No 104 1 Yes 5 8 Unknown 0 9 Missing 0 if not done reason why If CT NOT done, Why? 104 5 1 CT Down 28 2 Only Emergency CT 20 3 Patient too Sick 8 4 Can't Afford 4 5 Other 44 9 Missing 0 Sysmiss 5 date of scan Date of CT scan 5 time of scan Time of CT 5 0 location of scan kch, dyl, abc Location of CT scan 5 104 1 KCH 3 2 DYL 0 3 Partners in hope 0 4 ABC 2 5 Other; specify 0 8 Unknown 0 Sysmiss 104 pathology found Was pathology found on CT scan? If No, skip to section 2 5 104 0 No 3 1 Yes 2 8 Unknown 0 9 Missing 0 Sysmiss 104 side of brain affected Side of brain affected? 2 107 0 No 0 1 Left 1 2 Right 1 3 Bilateral 0 8 Unknown 0 9 Missing 0 Sysmiss 107 type of stroke Type of stroke/TIA? 2 107 0 Did not have a diagnosis 0 1 Ischaemic stroke 1 2 Haemorrhagic stroke 1 3 Subarachnoid 0 4 TIA 0 5 Unspecified stroke 0 9 Missing 0 Sysmiss 107 if not stroke / tia diagnosis If not a stroke to [strokesubtype]:Type of stroke/TIA? , specify diagnosis. 0 0 internal cerebal artery affected Internal cerebral artery (ICA) 2 107 0 No 1 1 Yes 0 8 Unknown 1 9 Missing 0 Sysmiss 107 anterior cerebal artery affected Anterior cerebral artery (ACA)? 2 107 0 No 1 1 Yes 0 8 Unknown 1 9 Missing 0 Sysmiss 107 middle cerebal artery affected Middle cerebral artery (MCA) 2 107 0 No 0 1 Yes 1 8 Unknown 1 9 Missing 0 Sysmiss 107 posterior cerebal artery affected Posterior cerebral artery (PCA) 2 107 0 No 1 1 Yes 0 8 Unknown 1 9 Missing 0 Sysmiss 107 lacunar cerebal artery affected Lacunar infarct 2 107 0 No 1 1 Yes 0 8 Unknown 1 9 Missing 0 Sysmiss 107 basilar cerebal artery affected Basilar artery 2 107 0 No 1 1 Yes 0 8 Unknown 1 9 Missing 0 Sysmiss 107 who completed form Who completed the form? 109 0 1 Radiologist 0 2 Physician 1 3 STS staff (DYL only) 108 9 Missing 0 staff code Staff code Recorder: 109 0 Staff code staff code Entry by: 109 0 Staff code staff code Updated by: 1 0 Date of entry Date of entry 109 Date of Update Date of update 1 Verified Verified 77 32 0 No 16 1 Yes 61 8 Unknown 0 9 Missing 0 Sysmiss 32 version Version 164 0 boabab number Boabab number 28 0 boabab number additional Boabab number additional 2 0 study identifier Study identifier 164 0 contact number Contact number 164 0 interview date Date of interview 0 stsreg number STS registration number 0 0 patient conscious ion examination Is Patient conscious on exam? 164 0 0 No 31 1 Yes 133 8 Unknown 0 9 Missing 0 initial examination right face weakness Initial examination right face weakness 133 31 0 No 93 1 Yes 37 2 Unable to assess 3 3 Refused 0 9 Missing 0 Sysmiss 31 133 31 0 No 91 1 Yes 39 2 Unable to assess 3 3 Refused 0 9 Missing 0 Sysmiss 31 133 31 0 No 77 1 Yes 53 2 Unable to assess 3 3 Refused 0 9 Missing 0 Sysmiss 31 133 31 0 No 63 1 Yes 67 2 Unable to assess 3 3 Refused 0 9 Missing 0 Sysmiss 31 133 31 0 No 77 1 Yes 53 2 Unable to assess 3 3 Refused 0 9 Missing 0 Sysmiss 31 133 31 0 No 63 1 Yes 67 2 Unable to assess 3 3 Refused 0 9 Missing 0 Sysmiss 31 133 31 0 No 77 1 Yes 53 2 Unable to assess 3 3 Refused 0 9 Missing 0 Sysmiss 31 initial examination left leg weakness Initial examination left leg weakness 133 31 0 No 60 1 Yes 70 2 Unable to assess 3 3 Refused 0 9 Missing 0 Sysmiss 31 initial examination right face sensory deficit Initial examination right face sensory deficit 133 31 0 No 123 1 Yes 3 2 Unable to assess 7 3 Refused 0 9 Missing 0 Sysmiss 31 initial examination left face sensory deficit Initial examination left face sensory deficit 133 31 0 No 118 1 Yes 9 2 Unable to assess 6 3 Refused 0 9 Missing 0 Sysmiss 31 initial examination right arm sensory deficit Initial examination right arm sensory deficit 133 31 0 No 122 1 Yes 4 2 Unable to assess 7 3 Refused 0 9 Missing 0 Sysmiss 31 initial examination left arm sensory deficit Initial examination left arm sensory deficit 133 31 0 No 117 1 Yes 9 2 Unable to assess 7 3 Refused 0 9 Missing 0 Sysmiss 31 initial examination right hand sensory deficit Initial examination right hand sensory deficit 133 31 0 No 122 1 Yes 4 2 Unable to assess 7 3 Refused 0 9 Missing 0 Sysmiss 31 initial examination left hand sensory deficit Initial examination left hand sensory deficit 133 31 0 No 118 1 Yes 9 2 Unable to assess 6 3 Refused 0 9 Missing 0 Sysmiss 31 initial examination right leg sensory deficit Initial examination right leg sensory deficit 133 31 0 No 122 1 Yes 3 2 Unable to assess 8 3 Refused 0 9 Missing 0 Sysmiss 31 initial examination left leg sensory deficit Initial examination left leg sensory deficit 133 31 0 No 117 1 Yes 9 2 Unable to assess 7 3 Refused 0 9 Missing 0 Sysmiss 31 initial examination right hemianopia Initial examination right hemianopia 133 31 0 No 127 1 Yes 1 2 Unable to assess 5 3 Refused 0 9 Missing 0 Sysmiss 31 initial examination left hemianopia Initial examination left hemianopia 133 31 0 No 127 1 Yes 1 2 Unable to assess 5 3 Refused 0 9 Missing 0 Sysmiss 31 initial examination right gaze palsy Initial examination right gaze palsy 133 31 0 No 126 1 Yes 3 2 Unable to assess 4 3 Refused 0 9 Missing 0 Sysmiss 31 initial examination left gaze palsy Initial examination left gaze palsy 133 31 0 No 128 1 Yes 1 2 Unable to assess 4 3 Refused 0 9 Missing 0 Sysmiss 31 initial examination right nystagmus Initial examination right nystagmus 133 31 0 No 129 1 Yes 0 2 Unable to assess 4 3 Refused 0 9 Missing 0 Sysmiss 31 initial examination left nystagmus initial examination left nystagmus 133 31 0 No 128 1 Yes 1 2 Unable to assess 4 3 Refused 0 9 Missing 0 Sysmiss 31 initial examination dysphasia Initial examination dysphasia 133 31 0 No 106 1 Yes 22 2 Unable to assess 5 3 Refused 0 9 Missing 0 Sysmiss 31 initial examination dysarthria Initial examination dysarthria 133 31 0 No 90 1 Yes 37 2 Unable to assess 6 3 Refused 0 9 Missing 0 Sysmiss 31 initial examination ataxia Initial examination ataxia 133 31 0 No 117 1 Yes 7 2 Unable to assess 9 3 Refused 0 9 Missing 0 Sysmiss 31 initial examination neglect Initial examination neglect 133 31 0 No 113 1 Yes 15 2 Unable to assess 5 3 Refused 0 9 Missing 0 Sysmiss 31 initial examination swalloing difficulty Initial examination swalloing difficulty 133 31 0 No 108 1 Yes 21 2 Unable to assess 4 3 Refused 0 9 Missing 0 Sysmiss 31 hiv results HIV test result 162 2 0 Negative 110 1 Positive 16 2 Doubtful 0 3 Refused to answer 0 4 Indeterminate 0 7 Not applicable 36 8 Unknown 0 9 Missing 2 syphilis results Syphilis (VDRL) result 156 8 0 Negative 48 1 Positive 2 2 Doubtful 0 3 Refused to answer 0 4 Indeterminate 0 7 Not applicable 106 8 Unknown 0 9 Missing 8 Blood glucose result 159 5 1 Low 1 2 Normal 85 3 High 6 4 Not requested 67 9 Missing 5 HBA1C result: 159 5 1 Low 0 2 Normal 8 3 High 0 4 Not requested 151 9 Missing 5 Lipids (triglycerides, cholesterol) 161 3 1 Low 0 2 Normal 10 3 High 0 4 Not requested 151 9 Missing 3 full blood count Full blood count (FBC) results 158 6 0 Normal 86 1 Abnormal 9 7 Not applicable 63 8 Unknown 0 9 Missing 6 biochemestry results Biochemistry results (urea/creatinine/electrolytes etc) 158 6 0 Normal 5 1 Abnormal 0 7 Not applicable 153 8 Unknown 0 9 Missing 6 urine analysis recorded Urine analysis recorded? 160 4 0 Normal 7 1 Abnormal 1 7 Not applicable 152 8 Unknown 0 9 Missing 4 tb sputum result TB sputum result recorded? 159 5 0 Negative 2 1 Positive 0 2 Doubtful 0 3 Refused to answer 0 4 Indeterminate 0 7 Not applicable 157 8 Unknown 0 9 Missing 5 sickle cell result Sickle cell result (young patients) 160 4 0 Negative 2 1 Positive 0 2 Doubtful 0 3 Refused to answer 0 4 Indeterminate 0 7 Not applicable 158 8 Unknown 0 9 Missing 4 c-reactive C-reactive protein 159 5 0 Normal 1 1 Abnormal 0 7 Not applicable 158 8 Unknown 0 9 Missing 5 erythrocyte result Erythrocyte sedimentation rate (ESR) 159 5 1 Low 0 2 Normal 2 3 High 0 4 Not requested 157 9 Missing 5 other results Other test results? Specify test 164 0 ecg done Was ECG done? If No, skip to section 4 161 3 0 No 155 1 Yes 6 8 Unknown 0 9 Missing 3 evidence of atrial fibrillation evidence of atrial fibrillation 6 158 0 No 4 1 Yes 1 8 Unknown 1 9 Missing 0 Sysmiss 158 evidence of other arrythmia evidence of other arrythmia 6 158 0 No 2 1 Yes 2 8 Unknown 2 9 Missing 0 Sysmiss 158 lumbar puncture done Was lumbar puncture done? If No, skip to next section 160 4 0 No 159 1 Yes 0 8 Unknown 1 9 Missing 4 lumbar puncture result Lumbar puncture result 0 164 0 No 0 1 Yes 0 8 Unknown 0 9 Missing 0 Sysmiss 164 has patient recieved any medication Has patient received any medication? If No, skip to section6 164 0 0 No 10 1 Yes 154 8 Unknown 0 9 Missing 0 has patient recieved asprin Has patient recieved asprin? 154 10 0 No 33 1 Yes 117 8 Unknown 4 9 Missing 0 Sysmiss 10 has patient recieved amoldipine Has patient recieved amoldipine? 154 10 0 No 103 1 Yes 48 8 Unknown 3 9 Missing 0 Sysmiss 10 date of death Date of death 0 has patient recieved enalapril Has patient recieved enalapril? 154 10 0 No 113 1 Yes 37 8 Unknown 4 9 Missing 0 Sysmiss 10 has patient recieved diuretic Has patient recieved diuretic? 154 10 0 No 55 1 Yes 95 8 Unknown 4 9 Missing 0 Sysmiss 10 has patient recieved other hypoglycemic Has patient recieved other hypoglycemic? 154 10 0 No 144 1 Yes 6 8 Unknown 4 9 Missing 0 Sysmiss 10 has patient recieved other oral diabetes Other oral diabetes meds? 154 10 0 No 143 1 Yes 6 8 Unknown 5 9 Missing 0 Sysmiss 10 has patient recieved injectable lente Has patient recieved injectable lente 154 10 0 No 152 1 Yes 2 8 Unknown 0 9 Missing 0 Sysmiss 10 has patient recieved other insulin Has patient recieved other insulin 154 10 0 No 151 1 Yes 3 8 Unknown 0 9 Missing 0 Sysmiss 10 has patient recieved anti-thrombotic Anti-thrombotic treatment (e.g. Ateplase) 154 10 0 No 153 1 Yes 0 8 Unknown 1 9 Missing 0 Sysmiss 10 when is next appointment Next Appointment date 0 has patient recieved pain relief Has patient recieved pain relief? 154 10 0 No 141 1 Yes 9 8 Unknown 4 9 Missing 0 Sysmiss 10 154 10 0 No 118 1 Yes 36 8 Unknown 0 9 Missing 0 Sysmiss 10 was chest x-ray done Was chest x-ray done? If No, skip to section 3 164 0 0 No 155 1 Yes 9 8 Unknown 0 9 Missing 0 evidence of pulmonoary edmea Pulmonary edema due to heart failure 9 155 0 No 9 1 Yes 0 8 Unknown 0 9 Missing 0 Sysmiss 155 evidence of heart enlargement Heart enlargement 9 155 0 No 7 1 Yes 1 8 Unknown 1 9 Missing 0 Sysmiss 155 evidence of other lung pathology Other lung pathology 9 155 0 No 7 1 Yes 1 8 Unknown 1 9 Missing 0 Sysmiss 155 was echocaridogram done Was an echocardiogram done? If No, skip to section 4 164 0 0 No 154 1 Yes 4 8 Unknown 6 9 Missing 0 evidence of abnormaility Is there evidence of abnormality? 4 160 0 No 2 1 Yes 1 8 Unknown 1 9 Missing 0 Sysmiss 160 evidence of atrial thrombus Atrial thrombus 1 163 0 No 1 1 Yes 0 8 Unknown 0 9 Missing 0 Sysmiss 163 evidence of ventricular thrombus Ventricular thrombus 1 163 0 No 0 1 Yes 1 8 Unknown 0 9 Missing 0 Sysmiss 163 evidence of mitral stenosis Mitral stenosis 1 163 0 No 1 1 Yes 0 8 Unknown 0 9 Missing 0 Sysmiss 163 evidence of mitrial regurgitation Mitral regurgitation 1 163 0 No 1 1 Yes 0 8 Unknown 0 9 Missing 0 Sysmiss 163 evidence of aortic valve stenosis Aortic valve stenosis 1 163 0 No 1 1 Yes 0 8 Unknown 0 9 Missing 0 Sysmiss 163 evidence of aortic regurgitation Aortic regurgitation 1 163 0 No 1 1 Yes 0 8 Unknown 0 9 Missing 0 Sysmiss 163 evidence of intra-ventricular wall abnormality Intra-ventricular wall abnormality 1 163 0 No 0 1 Yes 1 8 Unknown 0 9 Missing 0 Sysmiss 163 evidence of left atrial enalrgement Left atrial enlargement 1 163 0 No 1 1 Yes 0 8 Unknown 0 9 Missing 0 Sysmiss 163 evidence of left ventricle enalrgement Left ventricle enlargement 1 163 0 No 0 1 Yes 1 8 Unknown 0 9 Missing 0 Sysmiss 163 was carotid doppler done Was carotid doppler done? If No, skip to section 5 164 0 0 No 155 1 Yes 1 8 Unknown 8 9 Missing 0 carotid doppler result Carotid Doppler result 1 163 0 Normal 1 1 Abnormal 0 7 Not applicable 0 8 Unknown 0 9 Missing 0 Sysmiss 163 surgical treatment done Carotid Doppler result done? 0 164 0 No 0 1 Yes 0 8 Unknown 0 9 Missing 0 Sysmiss 164 probable cause of storke / tia Probable cause of stroke /TIA (or stroke like symptoms) 164 0 1 Intracerebral infarction 75 2 Intracerebral haemorrhage 65 3 Sub-arachnoid haemorrhage 4 4 Malignancy 1 5 Brain infection 3 6 Embolic disease 1 7 HIV 2 8 Mitral valve disease 0 9 Other 13 who completed form Who completed the form? 164 0 1 STS staff 89 2 Physician 59 3 Clinical officer 10 4 Medical assistant 2 5 Nurse 4 staff code Recorder: 164 0 staff code Entry by: 164 0 staff code Updated by: 1 0 Date of entry Date of entry 164 Date of update Date of update 1 Verified Verified 131 33 0 No 62 1 Yes 69 8 Unknown 0 9 Missing 0 Sysmiss 33 Version Version 124 0 Baobab (1) Boabab number 13 0 Baobab (2) Boabab number additional 0 0 13 character free text can be null STS registration number STS registration number 124 0 Study identifier Study identifier 124 0 Contact Number Contact number 124 0 1st stroke in study/recurrent event Is this follow-up for a stroke or TIA? 124 0 1 First stroke in study 91 2 33 3 Recurrent stroke in study 0 4 Recurrent TIA in study 0 No. in study 124 0 Available in versions -, 1 Interview date Date of interview 124 = 01/07/2015 and <= current date]]> Health Facility Health facility where f-up attempted 124 0 1 KCH 34 2 DYL 3 3 Area 25 health centre 87 Follow up type Type of follow-up? 124 0 1 1 week or 7 days 2 2 4 weeks or 30 days, 120 3 Failure to attend referral to KCH/tertiary clinic 2 Possible to follow up Was it possible to follow-up patient? 124 0 0 No 28 1 Yes 96 2 Refused 0 8 Unknown 0 9 Missing 0 If Q1.5 [visit]:Visit type (after most recent event in study) ,is failure to attend referral, ask reasons why patient did not take up referral 2 122 1 No transport 0 2 Too sick to travel, 0 3 No money for transport 1 4 Believe nothing can be done 1 5 Don't trust hospital care 0 6 Went to traditional healer instead 0 8 Don't know 0 9 No guardian to accompany 0 10 Not referred from clinic to hospital 0 11 Other or blank 0 Sysmiss 122 If Q1.5 [visit]:Visit type (after most recent event in study) ,is failure to attend referral, ask reasons why patient did not take up referral 1 123 1 No transport 0 2 Too sick to travel, 0 3 No money for transport 0 4 Believe nothing can be done 0 5 Don't trust hospital care 0 6 Went to traditional healer instead 0 8 Don't know 0 9 No guardian to accompany 1 10 Not referred from clinic to hospital 0 11 Other or blank 0 Sysmiss 123 If Q1.5 [visit]:Visit type (after most recent event in study) ,is failure to attend referral, ask reasons why patient did not take up referral 0 124 1 No transport 0 2 Too sick to travel, 0 3 No money for transport 0 4 Believe nothing can be done 0 5 Don't trust hospital care 0 6 Went to traditional healer instead 0 8 Don't know 0 9 No guardian to accompany 0 10 Not referred from clinic to hospital 0 11 Other or blank 0 Sysmiss 124 How was the follow-up performed? 96 28 1 Interview at KCH 6 2 Interview at DYL 2 3 Interview at Area 25 health clinic 6 4 On the telephone 82 5 Interview at home visit 0 6 Register entry at clinic 0 Sysmiss 28 Who provided information Who provided the information for the interview? 96 28 1 Participant 39 2 Participant with help from another person 43 3 All from another person 14 4 Hospital register data 0 Sysmiss 28 Who provided help Who provided the information for the interview? 96 28 0 No help 42 1 Spouse 19 2 Child 15 3 Relative 19 4 Health worker 0 5 Other 1 Sysmiss 28 Vital status What is the vital status at this follow-up interview? 96 28 1 Alive 93 2 Dead 3 3 Left 0 4 Missed 0 8 Unknown 0 9 Missing 0 Sysmiss 28 Date of death Date of death 3 =01/07/2015 and <= current date or blank Must be blank if vital status <> D]]> Living arrangement If patient alive, what is the living arrangement? 93 31 0 ??? 18 1 Home in Lilongwe 18 2 Rural home 17 3 Other hospital 3 4 Relatives house 3 5 Other 34 9 Missing 0 Sysmiss 31 Post-stroke care at the clinic/hospital If patient alive, have they received post-stroke care at the clinic/hospital (since the initial visit)? If Nogo to skip to 1.24 93 31 0 No 16 1 Yes 76 8 Unknown 1 9 Missing 0 Sysmiss 31 Where post-stroke care Where did the patient receive post-stroke care? 76 48 1 KCH 19 2 DYL 25 3 Area 25 health clinic 0 4 ABC clinic 0 5 Private clinic 1 6 Queen Elizabeth Hospital 1 7 Traditional healer 0 8 Other or blank 30 Sysmiss 48 Physiotherapy Physiotherepy 76 48 0 No 3 1 Yes 73 8 Unknown 0 9 Missing 0 Sysmiss 48 Occupational therapy Occupational therapy 76 48 0 No 76 1 Yes 0 8 Unknown 0 9 Missing 0 Sysmiss 48 Speech therapy Speech therapy 76 48 0 No 69 1 Yes 7 8 Unknown 0 9 Missing 0 Sysmiss 48 Swallowing assessment Swallowing assessment 76 48 0 No 76 1 Yes 0 8 Unknown 0 9 Missing 0 Sysmiss 48 Nutritional assessment Nutritional assessment 76 48 0 No 73 1 Yes 0 8 Unknown 3 9 Missing 0 Sysmiss 48 Re-hospitalisation If re-hospitalized, for how long? 76 48 0 No 67 1 Yes 0 8 Unknown 9 9 Missing 0 Sysmiss 48 If re-hospitalized, for how long If re-hospitalized, for how long? 0 124 1 Less than a week 0 2 1-2 weeks 0 3 More than 4 weeks 0 4 Currently admitted 0 Sysmiss 124 Other care Other care (e.g. traditional healer) Please specify 76 48 0 No 56 1 Yes 5 8 Unknown 15 9 Missing 0 Sysmiss 48 If no care at clinic received, why? : first reason 0 124 1 Didn't understand that could get care from clinic 0 2 Don't know where to go to get care 0 3 Transport problems getting to care 0 4 Can't afford 0 5 Don't trust clinic medical care 0 6 KPS stroke study providing care as participating in study 0 7 Other reason, specify: 0 Sysmiss 124 If no care at clinic received, why? : second reason 0 124 1 Didn't understand that could get care from clinic 0 2 Don't know where to go to get care 0 3 Transport problems getting to care 0 4 Can't afford 0 5 Don't trust clinic medical care 0 6 KPS stroke study providing care as participating in study 0 7 Other reason, specify: 0 Sysmiss 124 If no care at clinic received, why? : third reason 0 124 1 Didn't understand that could get care from clinic 0 2 Don't know where to go to get care 0 3 Transport problems getting to care 0 4 Can't afford 0 5 Don't trust clinic medical care 0 6 KPS stroke study providing care as participating in study 0 7 Other reason, specify: 0 Sysmiss 124 Taken medication home Is patient taking medication since diagnosis? If No Skip to next section 93 31 0 No 13 1 Yes 80 8 Unknown 0 9 Missing 0 Sysmiss 31 Aspirin Aspirin 80 44 0 No 25 1 Yes 55 8 Unknown 0 9 Missing 0 Sysmiss 44 Amlodipine Amlodipine (or other Ca++ channel blocker) 80 44 0 No 49 1 Yes 31 8 Unknown 0 9 Missing 0 Sysmiss 44 Enalapril Enalapril (or other ACE inhibitor) 80 44 0 No 56 1 Yes 24 8 Unknown 0 9 Missing 0 Sysmiss 44 Hydrochlorothiazide Hydrochlorothiazide (or other diuretic) 80 44 0 No 21 1 Yes 59 8 Unknown 0 9 Missing 0 Sysmiss 44 Other hypertension medication Other hypertension medication 80 44 0 No 70 1 Yes 9 8 Unknown 1 9 Missing 0 Sysmiss 44 Metformin Metformin (oral diabetes medication) 80 44 0 No 73 1 Yes 7 8 Unknown 0 9 Missing 0 Sysmiss 44 Other oral DM meds ( Other oral DM meds? Specify: 80 44 0 No 79 1 Yes 1 8 Unknown 0 9 Missing 0 Sysmiss 44 Lente insulin Lente insulin (injectable diabetes medication) 80 44 0 No 80 1 Yes 0 8 Unknown 0 9 Missing 0 Sysmiss 44 Other insulin Other insulin? Specify: 80 44 0 No 80 1 Yes 0 8 Unknown 0 9 Missing 0 Sysmiss 44 Other medication Other medication?, If yes, specify: 80 44 0 No 65 1 Yes 15 8 Unknown 0 9 Missing 0 Sysmiss 44 Date of TIA event one Recurrent tia event date 1 0 = 01/07/2015 and <= current date or blank Must be blank if No. of TIA events < 1]]> Date of TIA event two Recurrent tia event date 2 0 = 01/07/2015 and <= current date or blank Must be blank if No. of TIA events < 2]]> Date of TIA event three Recurrent tia event date 3 0 = 01/07/2015 and <= current date or blank Must be blank if No. of TIA events < 3]]> Date of stroke event one Recurrent stroke event date 1 0 = 01/07/2015 and <= current date or blank Must be blank if No. of Stroke events < 1]]> Date of stroke event two Recurrent stroke event date 2 0 = 01/07/2015 and <= current date or blank Must be blank if No. of Stroke events < 2]]> Date of Stroke event three Recurrent stroke event date 3 0 = 01/07/2015 and <= current date or blank Must be blank if No. of Stroke events < 3]]> Modified Rankin Modified Rankin 96 28 TIA since last visit 96 28 0 No 96 1 Yes 0 8 Unknown 0 9 Missing 0 Sysmiss 28 No. of TIA events 24h)]]> 96 28 0 No 96 1 Yes 0 8 Unknown 0 9 Missing 0 Sysmiss 28 No. of TIA events Number of recurrent tia events 96 28 No. of stroke events Number of recurrent stoke events 96 28 Y]]> Staff code Recorder: 124 0 Staff code Entry by: 124 0 Staff code Updated by: 5 0 Date of data entry Date of entry 124 Available in versions -, 1 Date data updated Date of update 5 Available in versions -, 1 Verified Verified 98 26 0 No 51 1 Yes 47 8 Unknown 0 9 Missing 0 Sysmiss 26 version Version 179 0 clinic code Clinic code 179 0 sts register number STS registration number 179 0 cno identifier 179 0 study identifier Study identifier 179 0 date in clinic register Date in clinic register 179 time in clinic register Time in clinic register 179 0 seen Patient seen in clinic 179 0 0 No 0 1 Yes 179 8 Unknown 0 9 Missing 0 first name First name 179 0 last name Last name 179 0 baobab number Baobab number 46 0 stid allready in passport y or n STID in passport 179 0 0 No 171 1 Yes 8 8 Unknown 0 9 Missing 0 Sex 179 0 0 Male 88 1 Female 91 8 Unknown 0 9 Missing 0 Age Age 179 0 presenting complaint Presenting complaint 179 0 1 Stroke 129 2 TIA 39 3 Other 11 9 Missing 0 date of onset of symptoms Date of onset symptoms 179 5 174 1 Full date known 0 2 Day unknown 2 3 Month unknown 0 4 Day and month unknown 3 8 Not known at all 0 9 Missing 0 Sysmiss 174 village of residence Village of residence 147 0 area of residence Area of residence 83 96 zone of residence Zone of residence 25 0 admitted to kch / dyl Admitted to KCH /DYL 147 32 1 Yes 134 2 No, sent home 11 3 Died 2 Sysmiss 32 referred to kch Referred to KCH 32 147 1 Yes 12 2 No, sent home 20 3 No, died 0 4 No, other outcome 0 Sysmiss 147 phone number of patient / guardian Phone number 147 0 staff code Recorder: 179 0 staff code Entry by: 179 0 staff code Updated by: 60 0 Date of entry Date of entry 179 Date of update Date of update 60 Verified Verified 150 29 0 No 6 1 Yes 144 8 Unknown 0 9 Missing 0 Sysmiss 29 Version Version 169 0 Boabab number Boabab number 28 0 Boabab number additional Boabab number additional 2 0 Study identifier Study identifier 169 0 Contact Number Contact Number 169 0 Type of form Type of form 169 0 1 Initial form, for data entry 2 2 Initial form, not for entry - to file 0 3 Final form, for entry, no initial form 167 4 Final form, for entry- to file initial form 0 STSREG number STS registration number 169 0 Interview date Interview/record date 169 Where was the patient interviewed If alive, where was the patient interviewed? 169 0 1 KCH 79 2 DYL 66 3 Area 25 health centre 24 4 Home 0 5 Other 0 Patient type Patient type 169 0 4 Attended this facility without referral 117 6 Referred from area 25 health clinic 6 7 Referred from other district health clinic 46 8 Other. Specify: 0 which department was the patient admitted to If yes to (hospadmitprev):Was the patient admitted to hospital? If no, skip to section 8, which department was patient admitted to? 30 139 1 Short stay only 3 2 High Depend Unit 1 3 Inpatient ward (after short stay) 26 Sysmiss 139 Living arrgangement What is the participants living arrangement? 169 0 1 Living in own home 127 2 Living in rented home 26 3 Living with relatives 16 4 Other 0 9 Missing 0 patient live alone Does the patient live alone? 169 0 1 Yes, lives alone 3 2 No, with spouse 102 3 No, with parents 3 4 No, with relatives 52 5 No, with other people 9 8 Unknown 0 9 Missing 0 Modified Rankin score prior to event Modified Rankin score prior to event 169 0 who assisted at home prior to event If Q 8.1(assistreq):Did the patient require assistance at home before this illness event? =yes, who assisted the patient at home before this illness event? 7 162 1 Spouse 1 2 Child 6 3 Relative 0 4 Friend/neighbour 0 5 Paid employee 0 Sysmiss 162 Barthel ADL prior to stroke bowels 169 0 0 Incontinence or catheterized and unable to manage 1 1 Occasional accident 1 2 Continent (for over 7 days) (max once per 24 hours) 167 Barthel ADL prior to stroke bladder 169 0 0 Incontinence or catheterized and unable to manage 2 1 Occasional accident 0 2 Continent (for over 7 days) (max once per 24 hours) 167 Barthel ADL prior to stroke grooming 169 0 0 Needs help 3 1 Independent face/hair/teeth/shaving 166 Barthel ADL prior to stroke toilet use 169 0 0 Dependent 2 1 Needs some help but can do something 1 2 Independent (on and off, dressing, wiping) 166 Barthel ADL prior to stroke feeding 169 0 0 Unable 1 1 Needs help (e.g. cutting) 1 2 Independent 167 Barthel ADL prior to stroke transfer 169 0 0 Unable 1 1 Major help (1-2 people) 1 2 Minor help ( verbal or physical) 4 3 Independent 163 Barthel ADL prior to stroke mobility 169 0 0 Immobile 1 1 Wheel chair 0 2 Walks with help (verbal or physical) 4 3 Independent (may use aid) 164 Barthel ADL prior to stroke dressing 169 0 0 Dependent 2 1 Needs help but can do about half unaided 2 2 Independent 165 Barthel ADL prior to stroke stairs 169 0 0 Unable 3 1 Needs help (verbal/physical) 4 2 Independent up and down 162 Barthel ADL prior to stroke bathing 169 0 0 Dependent 4 1 Independent 165 Barthel ADL prior to stroke total score Barthel ADL prior to stroke total score 169 0 Ever diagnosed with stroke / TIA Have you ever been diagnosed with stroke or TIA by a doctor or other health professional before this event? 169 0 0 No 150 1 Yes, stroke 11 2 Yes, TIA 8 8 Don't know 0 9 Missing 0 When first diagnosed When first diagnosed 13 Barthel ADL at interview bowels 169 0 0 Incontinence or catheterized and unable to manage 67 1 Occasional accident 26 2 Continent (for over 7 days) (max once per 24 hours) 76 Barthel ADL at interview bladder 169 0 0 Incontinence or catheterized and unable to manage 68 1 Occasional accident 35 2 Continent (for over 7 days) (max once per 24 hours) 66 Barthel ADL at interview grooming 169 0 0 Needs help 120 1 Independent face/hair/teeth/shaving 49 Barthel ADL at interview toilet use 169 0 0 Dependent 73 1 Needs some help but can do something 51 2 Independent (on and off, dressing, wiping) 45 Barthel ADL at interview feeding 168 1 0 Unable 46 1 Needs help (e.g. cutting) 62 2 Independent 60 Sysmiss 1 Barthel ADL at interview transfer 169 0 0 Unable 69 1 Major help (1-2 people) 53 2 Minor help ( verbal or physical) 20 3 Independent 27 Barthel ADL at interview mobility 169 0 0 Immobile 65 1 Wheel chair 47 2 Walks with help (verbal or physical) 31 3 Independent (may use aid) 26 Barthel ADL at interview dressing 169 0 0 Dependent 98 1 Needs help but can do about half unaided 43 2 Independent 28 Barthel ADL at interview stairs 169 0 0 Unable 131 1 Needs help (verbal/physical) 19 2 Independent up and down 19 Barthel ADL at interview bathing 169 0 0 Dependent 130 1 Independent 39 Barthel ADL at interview Total 169 0 modified Rankin at interview total modified Rankin at interview total 169 0 how long since BP measured How long ago did you last have your blood pressure measured? (999 for never measured)], 0 if less than a month 169 0 ever diagnose high BP by health professional Have you ever been diagnosed with high blood pressure by a doctor or other health professional? 169 0 0 No 63 1 Yes 106 8 Unknown 0 9 Missing 0 what age first diagnosed high BP 999 if unknown If yes to (diabp):ever diagnose high BP by health professional , what age were you when you first diagnosed? (relevant if Q16.5=yes) 106 63 Regular medication high BP 106 63 0 No 7 1 Yes 99 8 Unknown 0 9 Missing 0 Sysmiss 63 Hydrochlorthiazide 99 70 0 No 17 1 Yes 82 8 Unknown 0 9 Missing 0 Sysmiss 70 Amlodipine If yes to (remdbp):Are you on regular medication for high blood pressure? (relevant if Q16.5(diabp):Have you ever been diagnosed with high blood pressure by a doctor or other health professional? =yes, name of medication ;Amlodipine? 99 70 0 No 70 1 Yes 29 8 Unknown 0 9 Missing 0 Sysmiss 70 Nifedipine If yes to (remdbp):Are you on regular medication for high blood pressure? (relevant if Q16.5(diabp):Have you ever been diagnosed with high blood pressure by a doctor or other health professional? =yes), name of medication ;Nifedipine? 99 70 0 No 62 1 Yes 37 8 Unknown 0 9 Missing 0 Sysmiss 70 Enalapril If yes to (remdbp):Are you on regular medication for high blood pressure? (relevant if Q16.5(diabp):Have you ever been diagnosed with high blood pressure by a doctor or other health professional? =yes), name of medication ;Enalapril? 99 70 0 No 79 1 Yes 20 8 Unknown 0 9 Missing 0 Sysmiss 70 Captopril/Lisinopril If yes to (remdbp):Are you on regular medication for high blood pressure? (relevant if Q16.5(diabp):Have you ever been diagnosed with high blood pressure by a doctor or other health professional? =yes) , name of the medication : Captopril/Lisinopril 99 70 0 No 84 1 Yes 15 8 Unknown 0 9 Missing 0 Sysmiss 70 Atenolol If yes to (remdbp):Are you on regular medication for high blood pressure? (relevant if Q16.5(diabp):Have you ever been diagnosed with high blood pressure by a doctor or other health professional? =yes) ,name of medication ;Captopril/Lisinopril? 99 70 0 No 93 1 Yes 6 8 Unknown 0 9 Missing 0 Sysmiss 70 Propranolol If yes to (remdbp):Are you on regular medication for high blood pressure? (relevant if Q16.5(diabp):Have you ever been diagnosed with high blood pressure by a doctor or other health professional? =yes) , name of medication ;Atenolol? 99 70 0 No 69 1 Yes 30 8 Unknown 0 9 Missing 0 Sysmiss 70 Methyldopa/Aldomet If yes to (remdbp):Are you on regular medication for high blood pressure? (relevant if Q16.5(diabp):Have you ever been diagnosed with high blood pressure by a doctor or other health professional? =yes) , name of medication ;Propranolol? 99 70 0 No 99 1 Yes 0 8 Unknown 0 9 Missing 0 Sysmiss 70 Other BP medication 1 If yes to (remdbp):Are you on regular medication for high blood pressure? (relevant if Q16.5(diabp):Have you ever been diagnosed with high blood pressure by a doctor or other health professional? =yes) ,name of medication ; Other, specify [1] 99 70 0 No 93 1 Yes 6 8 Unknown 0 9 Missing 0 Sysmiss 70 Other BP medication 2 If yes to (remdbp):Are you on regular medication for high blood pressure? (relevant if Q16.5(diabp):Have you ever been diagnosed with high blood pressure by a doctor or other health professional? =yes) ,name of medication ; Other, specify [2] 99 70 0 No 94 1 Yes 5 8 Unknown 0 9 Missing 0 Sysmiss 70 Other BP medication 3 If yes to (remdbp):Are you on regular medication for high blood pressure? (relevant if Q16.5(diabp):Have you ever been diagnosed with high blood pressure by a doctor or other health professional? =yes) ,name of medication ; Other, specify [3] 99 70 0 No 91 1 Yes 8 8 Unknown 0 9 Missing 0 Sysmiss 70 Last time blood sugar checked 999 for never measured When was the last time you had your blood sugar checked? 169 0 998 Unknown 999 Missing ever diagnosed diabetes by a health professional Have you been diagnosed with diabetes by a doctor or other health professional? If No go to Q16.14 164 5 0 No 153 1 Yes 11 8 Unknown 0 9 Missing 5 waht age diagnosed diabetes by a health professional 999 if unknown 11 158 regular medication for diabetes 11 158 0 No 3 1 Yes 8 8 Unknown 0 9 Missing 0 Sysmiss 158 Metformin 8 161 0 No 2 1 Yes 6 8 Unknown 0 9 Missing 0 Sysmiss 161 Glibenclamide 8 161 0 No 4 1 Yes 4 8 Unknown 0 9 Missing 0 Sysmiss 161 Lente 8 161 0 No 7 1 Yes 1 8 Unknown 0 9 Missing 0 Sysmiss 161 Actrapid If Nogo to Q16.41 8 161 0 No 7 1 Yes 1 8 Unknown 0 9 Missing 0 Sysmiss 161 Acraphane 8 161 0 No 8 1 Yes 0 8 Unknown 0 9 Missing 0 Sysmiss 161 Protaphane 8 161 0 No 8 1 Yes 0 8 Unknown 0 9 Missing 0 Sysmiss 161 Novomix 30 8 161 0 No 8 1 Yes 0 8 Unknown 0 9 Missing 0 Sysmiss 161 Other diabetes medication 1 8 161 0 No 8 1 Yes 0 8 Unknown 0 9 Missing 0 Sysmiss 161 Other diabetes medication 2 8 161 0 No 8 1 Yes 0 8 Unknown 0 9 Missing 0 Sysmiss 161 Other diabetes medication 3 8 161 0 No 8 1 Yes 0 8 Unknown 0 9 Missing 0 Sysmiss 161 last time cholestrol checked (months) 999 for never measured When was the last time you had your cholesterol checked? 169 0 ever diagnosed raised cholestrol by health professional Have you ever been diagnosed with raised cholesterol by a doctor or other health professional? If No go to Q16.21 164 5 0 No 161 1 Yes 3 8 Unknown 0 9 Missing 5 age first diagnose high cholestrol Relevant if Q10.15[diachole]:Have you ever been diagnosed with raised cholesterol by a doctor or other health professional? =Y=1 (Yes). If yes to (diachole): Have you ever been diagnosed with raised cholesterol by a doctor or other health professional? , what age were you when you first diagnosed? 999 if unknown 3 166 regular medication for high cholestrol Relevant if Q10.10=Y=0(yes) Are you on regular medication for raised cholesterol? 3 166 0 No 3 1 Yes 0 8 Unknown 0 9 Missing 0 Sysmiss 166 name of cholestrol medication name of cholestrol medication 0 0 ever diagnosed heart disease by health professional Have you ever been diagnosed with heart disease by a doctor or other health professional? If No go to Q10.31[diatb]:Have you ever been diagnosed with tuberculosis by a doctor or other health professional? 169 0 0 No 159 1 Yes 10 8 Unknown 0 9 Missing 0 age first diagnosed heart disease 999 if unknown 999 if unknown 10 159 type of heart disease diagnosed Type of heart disease you diagnosed? 10 159 1 Angina 4 2 Heart attack 0 3 Heart failure 6 4 Other 0 8 Don't know 0 Sysmiss 159 ever diagnosed TB by health professional Have you ever been diagnosed with tuberculosis by a doctor or other health professional? If No go 16.38 169 0 0 No 163 1 Yes 6 8 Unknown 0 9 Missing 0 age first diagnosed TB 999 if unknown 6 163 ever diagnosed Atrial fibrillation Have you ever been diagnosed with Atrial fibrillation? If No go to Q16.41 169 0 0 No 168 1 Yes 1 8 Unknown 0 9 Missing 0 age last diagnosed Atrial fibrillation Have you ever been diagnosed with Atrial fibrillation? If No go to Q16.41 1 168 History of claudation Do you have a history of claudication (pain in lower legs on exertion)? 169 0 0 No 153 1 Yes 15 8 Unknown 1 9 Missing 0 History of migraine Do you have a history of migraine? 169 0 0 No 123 1 Yes 46 8 Unknown 0 9 Missing 0 History of epilepsy Do you have a history of epilepsy? 169 0 0 No 169 1 Yes 0 8 Unknown 0 9 Missing 0 History of peptic ulcer Do you have a history of peptic ulcer disease? 169 0 0 No 166 1 Yes 3 8 Unknown 0 9 Missing 0 Ever taken cortraception Have you ever taken contraception? 169 0 0 No 153 1 Yes 16 8 Unknown 0 9 Missing 0 Type of cotraception If yes to (ocp):Ever taken cortraception? , what type did you take? 16 153 1 Injectable 10 2 Oral 5 3 Other or blank 1 Sysmiss 153 How many years take oral or injectable contraception How many years did you take oral or injectable contraception? 16 153 History of angina Do you have a history of Angina (heart pain on exertion)? 169 0 0 No 165 1 Walking up hills only 0 2 Walking more than 50 meters on the flat 1 3 Walking less than 50 meters on the flat 1 4 Rest or on minimal exertion 2 History of asthma Do you have a history of Asthma? 169 0 0 No 167 1 Yes-on treatment-occasional 1 2 Yes-on treatment-frequent 1 breathlessness Do you have breathlessness? 169 0 0 No 166 1 Walking up hills only 1 2 Walking more than 50 meters on the flat 0 3 Walking less than 50 meters on the flat 0 4 Rest or on minimal exertion 2 Reason 1 not taking medication If patient is NOT taking medication for a previously diagnosed condition, indicate why. Skip if no previous diag. 1 7 162 1 Stock out at clinic when last visited 0 2 No money for transport to clinic to collect meds 1 3 No treatment routinely available at clinic 1 4 Don't believe in medication 0 5 Side effects 1 6 Using alternative medication from healer 0 7 Too sick to attend clinic 0 8 Other 4 9 Missing 157 Sysmiss 5 Reason 2 not taking medication 2 167 1 Stock out at clinic when last visited 0 2 No money for transport to clinic to collect meds 0 3 No treatment routinely available at clinic 0 4 Don't believe in medication 0 5 Side effects 1 6 Using alternative medication from healer 0 7 Too sick to attend clinic 0 8 Other 1 9 Missing 96 Sysmiss 71 Reason 3 not taking medication 2 167 1 Stock out at clinic when last visited 0 2 No money for transport to clinic to collect meds 0 3 No treatment routinely available at clinic 0 4 Don't believe in medication 0 5 Side effects 1 6 Using alternative medication from healer 0 7 Too sick to attend clinic 0 8 Other 1 9 Missing 93 Sysmiss 74 sought care health clinic / hospital last 12 months In the past 12 months has the patient sought care at health clinic or hospital (for any illness)? 169 0 0 Zero 105 1 Once 28 2 Twice 16 3 More than twice or blank 20 9 Missing 0 Admitted to health centre or dispensary If Q 17.1(heightdone):Was height measured?;>0(No, too sick), has the patient been admitted to hospital in past 12 months? If Q 17.2[weightdone]:Was weight measured?= 0(No, too sick) skip to Q 17.4[deidw]:Device ID for weight. 64 105 0 Zero 37 1 Once 23 2 Twice 3 3 More than twice or blank 1 9 Missing 0 Sysmiss 105 reason most recent admission in last 12 months If Q 17.1(heightdone):Was height measured?;>0(No, too sick), has the patient been admitted to hospital in past 12 months? If Q 17.2= 0 skip to Q 17.4 27 142 1 Stroke 4 2 TIA 1 3 Malaria 11 4 Pneumonia 0 5 Surgery 0 6 Other or blank 11 9 Missing 0 Sysmiss 142 Any head trauma 3 months prior to stroke Any head trauma in 3 months prior to stroke? 169 0 0 No 162 1 Yes 1 8 Unknown 6 9 Missing 0 Family history of stroke Has any member of your family had a stroke or died from stroke? 169 0 0 No 148 1 Yes, father 2 2 Yes, mother 2 3 Yes, sibling 7 8 Don't know 10 9 Missing 0 Pulse rate Third measure 169 0 47 999 88.964 72.412 reason 1 care giver explains stroke What reason does the relative/care provider give to explain why the participant had a stroke? reason 1 169 0 1 High BP 45 2 God's will 6 3 Witch craft 0 4 A bleed in brain 0 5 A clot in brain 0 6 Other (specify) 38 7 No care provider 9 8 Does not know 71 9 Unable to respond 0 reason 2 care giver explains stroke What reason does the relative/care provider give to explain why the participant had a stroke? reason 2 19 150 1 High BP 1 2 God's will 3 3 Witch craft 0 4 A bleed in brain 0 5 A clot in brain 0 6 Other (specify) 9 7 No care provider 0 8 Does not know 6 9 Unable to respond 0 Sysmiss 150 reason 3 care giver explains stroke What reason does the relative/care provider give to explain why the participant had a stroke? reason 3 4 165 1 High BP 0 2 God's will 0 3 Witch craft 0 4 A bleed in brain 0 5 A clot in brain 0 6 Other (specify) 4 7 No care provider 0 8 Does not know 0 9 Unable to respond 0 Sysmiss 165 reason 1 paticipant explains stroke What reason does the participant give to explain why they had a stroke/TIA?, reason 1 169 0 1 High BP 23 2 God's will 3 3 Witch craft 0 4 A bleed in brain 0 5 A clot in brain 0 6 Other (specify) 21 7 No care provider 0 8 Does not know 67 9 Unable to respond 55 reason 2 paticipant explains stroke What reason does the participant give to explain why they had a stroke/TIA?, reason 2 14 155 1 High BP 1 2 God's will 3 3 Witch craft 0 4 A bleed in brain 0 5 A clot in brain 0 6 Other (specify) 8 7 No care provider 0 8 Does not know 2 9 Unable to respond 0 Sysmiss 155 reason 3 paticipant explains stroke What reason does the participant give to explain why they had a stroke/TIA?, reason 3 1 168 1 High BP 0 2 God's will 0 3 Witch craft 0 4 A bleed in brain 0 5 A clot in brain 0 6 Other (specify) 1 7 No care provider 0 8 Does not know 0 9 Unable to respond 0 Sysmiss 168 Ever admited to hospital for stroke TIA If no, skip to section 8 Was the patient admitted to hospital? 19 150 0 No 9 1 Yes, stroke 8 2 Yes, TIA 2 8 Don't know 0 9 Missing 0 Sysmiss 150 when first admitted for stroke TIA If Q 11.3(hospadm ):Have you ever been admitted to hospital for stroke or TIA before this event?= Yes,stroke or Yes,TIA, when were you first admitted to hospital for stroke/TIA? 7 KCH, DYL, A25 or Other KCH, DYL, A25 or Other 169 0 1 KCH 79 2 DYL 66 3 Partners in hope 0 4 ABC 24 5 Other; specify 0 8 Unknown 0 Who decided patient should attend 1 Who decided that the patient (participant) should attend clinic/hospital for treatment?;reason 1 126 43 1 The patient 23 2 Spouse of patient 27 3 Child of patient 23 4 Other relative of patient 8 5 Neighbor of patient 0 6 Other. Specify 3 8 Unknown 42 9 Missing 43 Who decided patient should attend 2 Who decided that the patient (participant) should attend clinic/hospital for treatment? ; reason 2 40 129 1 The patient 0 2 Spouse of patient 10 3 Child of patient 12 4 Other relative of patient 18 5 Neighbor of patient 0 6 Other. Specify 0 8 Unknown 0 9 Missing 27 Sysmiss 102 Who decided patient should attend 3 Who decided that the patient (participant) should attend clinic/hospital for treatment? ; reason 3 9 160 1 The patient 1 2 Spouse of patient 0 3 Child of patient 1 4 Other relative of patient 5 5 Neighbor of patient 1 6 Other. Specify 1 8 Unknown 0 9 Missing 33 Sysmiss 127 What influenced this visit 1 Why did they come the clinic/hospital now? What influenced them coming now?; reason 1 125 44 1 Patient very ill/severe symptoms at onset 52 2 Patient condition getting worse since onset of symptoms 28 3 In care for hypertension or other disease prior to stroke 2 4 Guardian available now to bring patient 0 5 Money available now for transport 0 6 Believe clinic/hosp. care will help patient 1 7 Other. Specify 1 8 Unknown 41 9 Missing 44 What influenced this visit 2 Why did they come the clinic/hospital now? What influenced them coming now?;reason 2 40 129 1 Patient very ill/severe symptoms at onset 1 2 Patient condition getting worse since onset of symptoms 30 3 In care for hypertension or other disease prior to stroke 7 4 Guardian available now to bring patient 1 5 Money available now for transport 0 6 Believe clinic/hosp. care will help patient 0 7 Other. Specify 1 8 Unknown 0 9 Missing 29 Sysmiss 100 What influenced this visit 3 Why did they come the clinic/hospital now? What influenced them coming now?; reason 3 18 151 1 Patient very ill/severe symptoms at onset 0 2 Patient condition getting worse since onset of symptoms 0 3 In care for hypertension or other disease prior to stroke 11 4 Guardian available now to bring patient 3 5 Money available now for transport 1 6 Believe clinic/hosp. care will help patient 2 7 Other. Specify 1 8 Unknown 0 9 Missing 33 Sysmiss 118 Dead or Alive at time of identification Is the participant dead or alive at time of identification? 169 0 1 Alive 169 2 Dead 0 3 Left 0 4 Missed 0 8 Unknown 0 9 Missing 0 date of death If day unknown, write uu/mm/yyyyy If dead, record the date of death. 0 Date of death estimate Date of death estimate 0 169 1 Full date known 0 2 Day unknown 0 3 Month unknown 0 4 Day and month unknown 0 8 Not known at all 0 9 Missing 0 Sysmiss 169 Cause of death Cause of death 0 169 1 Complication of stroke 0 2 Second stroke 0 3 Infection 0 4 Heart disease 0 5 Other medical 0 8 Unknown 0 Sysmiss 169 Place of death Where did the participant die? 0 169 1 Home 0 2 Hospital or health facility 0 3 Traditional healer or TBA 0 4 Relative's household 0 5 Other 0 8 Unknown 0 9 Missing 0 Sysmiss 169 Was the patient seen Skip if patient is dead If alive, was the patient seen? 169 0 0 No 1 1 Yes 168 8 Unknown 0 9 Missing 0 who provided information for the interview Who provided the information for the interview? 169 0 1 Participant 32 2 Participant with help from another person 75 3 All from another person 62 4 Hospital register data 0 who provided help for interview If help given, who provided help with interview 169 0 0 No help 34 1 Spouse 58 2 Child 48 3 Relative 26 4 Health worker 0 5 Other 3 STID in passport from NCD study Was a STID in passport from NCD study? 169 0 0 No 163 1 Yes 6 8 Unknown 0 9 Missing 0 What is participants resident status What is participant's resident status? 169 0 1 I live here (member or non member) 35 2 I am a visitor/itinerant 1 3 Employed/servant (living here or not) 40 4 Others 93 5 Resident in other area of Lilongwe 0 6 Resident outside Lilongwe 0 If not A25 resident or visitor residence location If not A25 resident or visitor residence location 133 0 3 digit code from meriuval_village 36 0 how many years lived here How many years has the participant lived here? Write '0' if less than a year 133 36 patient live in A25 previously 133 36 0 No 131 1 Yes 2 8 Unknown 0 9 Missing 0 Sysmiss 36 district , city born in Which district or city were you born in? 169 0 1 Balaka 2 2 Blantyre 3 3 Chikwawa 1 4 Chiladzulu 3 5 Chitipa 1 6 Dedza 4 7 Dowa 2 8 Karonga 2 9 Kasungu 2 10 Likoma 2 11 Lilongwe 10 12 Machinga 12 13 Mangochi 1 14 Mchinji 13 15 Mulanje 7 16 Mwanza 5 17 Mzimba 5 18 Neno 3 19 Nkhata Bay 5 20 Nkhotakota 62 21 Nsanje 3 22 Ntcheu 3 23 Ntchisi 0 24 Phalombe 0 25 Rumphi 0 26 Salima 5 27 Thyolo 3 28 Zomba 2 29 Others 6 98 Unknown 2 M or F Sex 169 0 0 Male 86 1 Female 83 8 Unknown 0 9 Missing 0 date ofbirth (For people who cannot remember exact year of birth, use the birth decade estimate from 0-9 below) Date of birth 167 date ofbirth estimate Date ofbirth estimate 65 104 1 Full date known 0 2 Day unknown 5 3 Month unknown 0 4 Day and month unknown 60 8 Not known at all 0 9 Missing 0 Sysmiss 104 age of participant >014 and <106 Age of participant >014 and <106 167 2 age of participant decade estimate Decade of birth 2 167 2 <1910 0 3 1910-19 0 4 1920-29 0 5 1930-39 1 6 1940-49 0 7 1950-59 1 8 1960-69 0 9 1970-79 0 10 1980-89 0 11 1990-99 0 Sysmiss 167 clin diagnosis of Stroke/TIA Has the patient received a clinical diagnosis of stroke or TIA? 169 0 0 No 0 1 Yes 164 2 Not yet, insufficient information, more diagnostics requested 5 type of diagnosis If Q 3.1 (diagyn):Has the patient received a clinical diagnosis of stroke or TIA? = Yes, What type of event was diagnosed? 164 5 0 Did not have a diagnosis 0 1 Ischaemic stroke 67 2 Haemorrhagic stroke 7 3 Subarachnoid 0 4 TIA 36 5 Unspecified stroke 54 9 Missing 0 Sysmiss 5 First stroke in study or recurrent event Is this a first event in STS study or a recurrent event (check passport and full study register)? 169 0 1 First stroke in study 137 2 30 3 Recurrent stroke in study 2 4 Recurrent TIA in study 0 number of event in study 01 - 10 169 0 Marital status What is your current marital status? 163 6 0 Never married 12 1 Married 109 2 Divorced/separated 6 3 Widowed 36 8 Unknown 0 9 Missing 0 Sysmiss 6 Number of spouses If Q 4.1( cmarital):What is your current marital status? = Married, how many spouses do you have now? 0 169 Ethnic background What is your ethnic background? 163 6 1 Chewa 86 2 Tumbuka 7 3 Ngoni 25 4 Yao 15 5 Lomwe 17 6 Nkhonde 1 7 Other 12 Sysmiss 6 Other ethnic background If other, please specify 12 0 Highest level of education What is the highest level of education that you completed? 162 7 0 Illiterate, no formal education 30 1 Literate, no formal education 2 2 Standard 1-5, illiterate 10 3 Standard 1-5, literate 34 4 Standard 6-8 32 5 Secondary 38 6 Tertiary 16 9 Missing 1 Sysmiss 6 main work last 12 months Which of the following describes your main work status in the past 12 months? If Q 4.6= 4, 7,8,9 skip to Q4.9 163 6 1 Government employee 3 2 Employee non govt 28 3 Subsistence farmer/fisherman 34 4 Self employed 20 5 Student 2 6 At home housework 35 7 Unemployed able to work 12 8 Unemployed unable to work 10 9 Retired 16 10 Other 3 Sysmiss 6 other main work last 12 months If other, please specify 3 0 Full time / part time work If working, do you work full time or part time? 87 82 1 Full time 40 2 Part time 45 8 Unknown 2 9 Missing 38 Sysmiss 44 Average monthly take home earning Over the last year what was your average monthly take home earning per month? [kwacha] 163 6 mothers highest education What was the highest education attained by your mother? 163 6 0 Illiterate 73 1 Literate and no formal education 2 2 Up to primary school 39 3 Secondary school 4 4 Graduate or higher 5 8 Don't know 40 Sysmiss 6 fathers highest education What was the highest education attained by your father? 163 6 0 Illiterate 61 1 Literate and no formal education 2 2 Up to primary school 45 3 Secondary school 8 4 Graduate or higher 8 8 Don't know 39 Sysmiss 6 Date of first onset of symptoms Date of first onset of symptoms 164 Time of first onset of symptoms Time of onset of symptoms 169 0 unilateral weakness / paralysis Unilateral weakness/paralysis 169 0 0 No 7 1 Yes 161 8 Unknown 1 9 Missing 0 unilateral weakness / paralysis right/left Unilateral weakness/paralysis(Right/Left) 161 8 1 left 85 2 right 72 8 Unknown 4 9 Missing 0 Sysmiss 8 Speech problems Speech problems 169 0 0 No 52 1 Yes 117 8 Unknown 0 9 Missing 0 Speech problems right/left Speech problems(Right/Left) 23 146 1 left 3 2 right 3 8 Unknown 17 9 Missing 0 Sysmiss 146 Facial droop Facial droop 169 0 0 No 107 1 Yes 61 8 Unknown 1 9 Missing 0 Facial droop right/left Facial droop(Right/Left) 61 108 1 left 27 2 right 29 8 Unknown 5 9 Missing 0 Sysmiss 108 loss of consciousness 169 0 0 No 76 1 Yes 19 8 Unknown 74 9 Missing 0 fit / seizure Fit/seizure 169 0 0 No 91 1 Yes 2 8 Unknown 76 9 Missing 0 vision problems Vision problems (a new problem - NOT if vision problem before stroke) 169 0 0 No 78 1 Yes 13 8 Unknown 78 9 Missing 0 headache Headache 169 0 0 No 41 1 Yes 49 8 Unknown 79 9 Missing 0 first time patient ever had symptoms Time of onset of symptoms 169 0 0 No 16 1 Yes 153 8 Unknown 0 9 Missing 0 number of times had symptoms If Q 5.9( Headache )=No, how many times have they had these symptoms? 17 152 1 Once 11 2 Twice 3 3 3 times or more 2 4 Continuously since onset 1 9 Missing 5 Sysmiss 147 When was most recent event If Q 5.10 (numsymp):If Q 5.9( Headache )=No, how many times have they had these symptoms?= Once, Twice or 3 times or more , when was the most recent previous event of these symptoms? 10 Where was patient at most recent event Where was the patient during the most recent event (for which they have attend hospital)? 169 0 1 Home 138 2 Field 6 3 Office 4 4 Lake 0 5 Hospital 3 6 Church 6 7 Relatives house 2 8 Friends house 0 9 Other 10 duration of symptoms since onset Duration of symptoms at most recent event? 169 0 0 < 10 minutes 25 1 10-59 minutes 3 2 60minutes-24hrs 15 3 >24hours 124 8 Unknown 2 9 Missing 0 where they alone at most recent event Were they alone? 169 0 0 No 147 1 Yes 22 8 Unknown 0 9 Missing 0 who was present at most recent event If help given, who provided help with interview? 147 22 1 Spouse 69 2 Parent 4 3 Child 40 4 Neighbor 8 5 Hospital staff 2 6 Friend 1 7 Other 23 Sysmiss 22 who first contacted for help Who was first contacted for help? 169 0 1 Village KI 58 2 Village health worker 1 3 Office 13 4 Family member 62 5 Neighbour 10 6 Traditional healer 0 7 Relative 11 8 other (specify) 14 When was any first help sought When was ANY first help sought? 163 2015-07-01 2017-02-03 When was first medical help sought When was MEDICAL help (at clinic/hospital) sought? If same as above write same date. 163 what time did initially get help from clinic / hospital What time did they initially get help from the clinic/hospital? 169 0 how was patient transported to clinic How was the patient transported to the clinic? 84 85 1 Walked 6 2 Carried 0 3 Bike taxi 15 4 Car taxi 10 5 Private car 43 6 Oxcart 2 7 Ambulance 1 8 Other. Specify 7 9 Missing 85 visit traditional healer after onset Did you visit the traditional healer's place after the onset of symptoms? 169 0 0 No 167 1 Yes 2 8 Unknown 0 9 Missing 0 type of traditional intervention If Q6.1=no, skip to section 7 If yes, Type of intervention (give details) 2 167 1 Oral medication 1 2 Bath 0 3 Inhalation 0 4 Topical 0 5 Other 0 6 Cutting 1 Sysmiss 167 length of traditional treatment Length of treatment 2 167 0 1 1 1 Sysmiss 167 was the patient admitted to hospital previously Was the patient admitted to hospital? If no, skip to section 8 169 0 0 No 139 1 Yes 30 8 Unknown 0 9 Missing 0 when was the patient admitted 30 where was the patient admitted Where was the patient admitted? 30 139 1 KCH 5 2 DYL 4 3 Partners in hope 0 4 ABC 0 5 Other; specify 19 8 Unknown 2 Sysmiss 139 patient require assistance at home prior to event 169 0 0 No 162 1 Yes 7 8 Unknown 0 9 Missing 0 was height measured Was height measured? 167 2 1 Yes 38 2 No, too sick 129 3 No, faulty equipment 0 9 Missing 2 was weight measured Was weight measured? 167 2 1 Yes 39 2 No, too sick 128 3 No, faulty equipment 0 9 Missing 2 device ID for Height 38 0 device ID for Weight Device ID for weight WO =scale + 2 Digits eg. Wo11(DYl), Wo 12(A25), Wo13(KCH) 39 0 Weight first measure 39 130 446 1190 697.974 159.858 Height first measure 38 131 1439 1811 1644.737 98.065 Waist circumference first measure 169 0 645 9999 6014.793 4528.975 Hip circumference first measure 169 0 710 9999 6030.988 4510.743 MUA circumference first measure 169 0 220 999 289.899 101.038 Weight second measure 39 130 446 1190 697.923 159.847 Height second measure 38 131 1439 1811 1644.789 98.073 Waist circumference second measure 169 0 645 9999 6014.852 4528.908 Hip circumference second measure 169 0 710 9999 6031.077 4510.643 MUA circumference second measure 169 0 220 999 289.947 101.029 Blood pressure taken right arm Blood pressure taken right arm 169 0 0 No 2 1 Yes 167 8 Unknown 0 9 Missing 0 Arm circumference Arm circumference [cm] If <24cm, use pediatric cuff , if 24-32cm use regular cuff and if 33-41cm use large cuff 168 1 1 <24cm 11 2 24-32cm 136 3 33-41cm 21 9 Missing 1 Device id blood pressure Device ID for blood pressure OM11(DYL), OM12(A25), OM13(KCH) 169 0 Systolic BP First measure 169 0 82 999 155.16 73.061 Systolic BP Second measure 169 0 89 999 152.621 72.131 Systolic BP Third measure 169 0 85 999 150.107 71.464 Diastolic BP First measure 169 0 53 999 94.657 73.268 169 0 50 999 91.976 71.896 Diastolic BP Third measure 169 0 52 999 90.13 72.041 Pulse rate First measure 169 0 43 999 89.533 72.519 169 0 31 999 88.704 72.653 Staff code Recorder: 169 0 Entry by Entry by: 169 0 Updated by Updated by: 74 0 Entry date Entry date 169 Update date Update date 74 verified Verified 138 31 0 No 31 1 Yes 107 8 Unknown 0 9 Missing 0 Sysmiss 31 Version Version 168 0 Study identifier Study identifier 168 0 Contact Number Contact Number 168 0 Type of form Type of form: 168 0 1 Initial form, for data entry 2 2 Initial form, not for entry - to file 0 3 Final form, for entry, no initial form 166 4 Final form, for entry- to file initial form 0 ever smoked cigarettes Have you ever smoked cigarettes regularly (i.e. at least weekly)? If never go to Q 20.6 168 0 0 Never 129 1 Formerly (stopped more than 6 months ago) 6 2 Current (in last 6 months) 33 age started smoking 999 if unknown 8 160 how many years smoked 8 160 days per week smoked 8 160 7 Not applicable 8 Unknown 9 Missing Number of cigarettes in a smoking day 8 160 ever taken other tobacco Have you ever taken other tobacco regularly (i.e. at least weekly)? 168 0 0 Never 132 1 Formerly (stopped more than 6 months ago) 0 2 Current (in last 6 months) 36 type of other tobacco 1 167 1 Pipe smoking 0 2 Cigars 0 3 Chewed tobacco 0 4 Snuff 1 Sysmiss 167 how old started other tobacco 999 if unknown 1 167 how many years did you consume other tobacco 1 167 number per week other tobacco 1 167 Number of other in an other tobacco day 1 167 consumed alcohol in past 12 months Have you consumed alcohol (beer, kachasu, masese, chibuku, sachets etc ...) within the past 12 months? If No - skip to section 22 138 30 0 No 128 1 Yes 10 8 Unknown 0 9 Missing 30 How often drink If Q 21.1(alcohol): Have you consumed alcohol (beer, kachasu, masese, chibuku, sachets etc ...) within the past 12 months? = yes, Over the last 12 months, on average, how often have you had at least one alcoholic drink? 10 158 1 Daily 1 2 5-6 days per week 2 3 1-4 days per week 1 4 1-3 days per month 4 5 Less than once a month 2 Sysmiss 158 Sachet drunk in last 7 days 10 158 0 No 10 1 Yes 0 8 Unknown 0 9 Missing 0 Sysmiss 158 Chibuku drunk in last 7 days 10 158 0 No 4 1 Yes 6 8 Unknown 0 9 Missing 0 Sysmiss 158 10 158 0 No 7 1 Yes 3 8 Unknown 0 9 Missing 0 Sysmiss 158 Wine drunk in last 7 days 10 158 0 No 10 1 Yes 0 8 Unknown 0 9 Missing 0 Sysmiss 158 Carlsberg drunk in last 7 days 10 158 0 No 7 1 Yes 3 8 Unknown 0 9 Missing 0 Sysmiss 158 Kuche drunk in last 7 days 10 158 0 No 10 1 Yes 0 8 Unknown 0 9 Missing 0 Sysmiss 158 Powers drunk in last 7 days 10 158 0 No 10 1 Yes 0 8 Unknown 0 9 Missing 0 Sysmiss 158 Brandy drunk in last 7 days 10 158 0 No 10 1 Yes 0 8 Unknown 0 9 Missing 0 Sysmiss 158 Malawi Gin drunk in last 7 days 10 158 0 No 10 1 Yes 0 8 Unknown 0 9 Missing 0 Sysmiss 158 Number of days in last 7 drank Sachet 0 168 Number of days in last 7 drank Chibuku 6 162 Number of days in last 7 drank Home brew 3 165 Number of days in last 7 drank wine 0 168 Number of days in last 7 drank carlsberg 3 165 Number of days in last 7 drank Kuche 0 168 Number of days in last 7 drank Powers 0 168 Number of days in last 7 drank Brandy 0 168 Number of days in last 7 drank Malawi gin 0 168 Number consumed last 7 days of sachet 0 168 Number consumed last 7 days of chibuku 6 162 Number consumed last 7 days of home brew 3 165 Number consumed last 7 days of wine 0 168 Number consumed last 7 days of carlsburg 3 165 Number consumed last 7 days of kuche 0 168 Number consumed last 7 days of powers 0 168 Number consumed last 7 days of brandy 0 168 Number consumed last 7 days of malawi gin 0 168 Indoor fire primary cooking > 6months of life Has an indoor fire with wood or crop residue or dung been used in your home as a primary means of cooking for more than 6 months in your life? 128 40 0 No 8 1 Yes, inside the house 22 2 Yes, but in a separate kitchen area 98 9 Missing 40 How many years indoor fire primary cooking (relevant if Q5.1=H or K), write '0' if less than a year If yes to (indsmoke):Has an indoor fire with wood or crop residue or dung been used in your home as a primary means of cooking for more than 6 months in your life? , how many years has wood or crop residue or dung been used for cooking in your home? 120 48 How many hours a day spent cooking with wood or crop residue 120 48 98 Unknown 99 Missing Wood or crop residue still used Is wood or crop residue or dung still used for cooking in your home? 168 0 0 No 1 1 Yes 123 8 Unknown 44 9 Missing 0 stove vented to outside Is your stove or fire vented to the outside (e.g. by a chimney)? 168 0 0 No 4 1 Yes 121 8 Unknown 43 9 Missing 0 Household member who smokes Is there someone in your household who smokes cigarettes or other tobacco inside the house? 168 0 0 No 117 1 Yes 8 8 Unknown 43 9 Missing 0 diagnostic test medications sheet completed Has a diagnostic tests/medications sheet been completed by hospital medical staff? 168 0 1 Yes 159 2 No diagnostic tests requested 9 9 Missing 0 CT imaging form completed Has a CT imaging form been completed by radiology? 168 0 1 Yes 62 2 No imaging requested 106 9 Missing 0 patient recieving med since stroke / TIA Is the patient receiving any medicine since had stroke or TIA? 166 2 0 No 16 1 Yes 150 8 Unknown 0 9 Missing 2 medicines sheet completed If yes to(drugsinhosp): Is the patient receiving any medicine since had stroke or TIA?, has medicines sheet been completed by hospital medical staff? 161 7 0 No 12 1 Yes 149 8 Unknown 0 9 Missing 7 Patient know about stroke study Did the patient know about the stroke study (either in area 25, KCH or DYL)? 165 3 0 No 153 1 Yes 12 8 Unknown 0 9 Missing 3 Patient admitted to hospital Has patient been admitted to hospital? 167 1 0 No 37 1 Yes 130 8 Unknown 0 9 Missing 1 date of admission to hospital If yes to (hospadmit):Has patient been admitted to hospital?, when was the patient admitted to hospital? 130 recieved specialist stroke care If yes to (hospadmit):Has patient been admitted to hospital?, has patient received specialist stroke care during stay? If yes, what type? If No/Unk Skip ->section 28 130 38 0 No 60 1 Yes 70 8 Unknown 0 9 Missing 0 Sysmiss 38 Physiotherapy 70 98 0 No 8 1 Yes 62 8 Unknown 0 9 Missing 0 Sysmiss 98 occupational therapy 70 98 0 No 63 1 Yes 7 8 Unknown 0 9 Missing 0 Sysmiss 98 speech therapy 70 98 0 No 56 1 Yes 14 8 Unknown 0 9 Missing 0 Sysmiss 98 swallowing therapy 70 98 0 No 63 1 Yes 7 8 Unknown 0 9 Missing 0 Sysmiss 98 Nutritionist assesment 70 98 0 No 62 1 Yes 0 8 Unknown 8 9 Missing 0 Sysmiss 98 Other care 70 0 Dead / Alive at dischrage Dead / Alive at dischrage 155 13 1 Alive 128 2 Dead 27 8 Unknown 0 9 Missing 13 date of death if Dead at discharge Date of death if Dead at discharge 27 date of death if Dead at discharge estimate Date of death if Dead at discharge estimate 1 167 1 Full date known 0 2 Day unknown 1 3 Month unknown 0 4 Day and month unknown 0 8 Not known at all 0 9 Missing 0 Sysmiss 167 cause of death if Dead at discharge Cause of death if Dead at discharge 27 141 0 Not stroke/TIA 0 1 Stroke 25 2 TIA 2 Sysmiss 141 where died if Dead at discharge Where did the participant die? 26 142 1 Short stay 1 2 Inpatient ward 23 3 Surgery 0 4 Other 2 9 Missing 1 Sysmiss 141 date of discharge Date of discharge 124 destination of patient at discharge If alive at discharge, record the date of discharge 122 46 0 ??? 0 1 Home in Lilongwe 113 2 Rural home 1 3 Other hospital 3 4 Relatives house 2 5 Other 3 9 Missing 19 Sysmiss 27 patient take medication home Has patient taken medication home? If No Skip to next section 149 19 0 No 38 1 Yes 111 8 Unknown 0 9 Missing 0 Sysmiss 19 patient take asprin home 111 57 0 No 18 1 Yes 91 8 Unknown 2 9 Missing 0 Sysmiss 57 patient take amoldipine home 111 57 0 No 79 1 Yes 32 8 Unknown 0 9 Missing 0 Sysmiss 57 patient take enalapril home Enalapril (or other ACE inhibitor)? 111 57 0 No 90 1 Yes 21 8 Unknown 0 9 Missing 0 Sysmiss 57 patient takehydrochlorothiazide home 111 57 0 No 36 1 Yes 75 8 Unknown 0 9 Missing 0 Sysmiss 57 patient take other hypertension home Other hypertension medication? 111 57 0 No 108 1 Yes 2 8 Unknown 1 9 Missing 0 Sysmiss 57 patient takemetaformin home Metformin (oral diabetes medication)? 111 57 0 No 105 1 Yes 6 8 Unknown 0 9 Missing 0 Sysmiss 57 patient take other oral DM home Other oral DM meds? Specify: 111 57 0 No 109 1 Yes 2 8 Unknown 0 9 Missing 0 Sysmiss 57 patient take lente insulin home Lente insulin (injectable diabetes medication)? 111 57 0 No 110 1 Yes 1 8 Unknown 0 9 Missing 0 Sysmiss 57 patient takeother insulin home Other insulin? Specify: 111 57 0 No 111 1 Yes 0 8 Unknown 0 9 Missing 0 Sysmiss 57 patient take other medication home Other medication? If yes, specify: 111 57 0 No 82 1 Yes 29 8 Unknown 0 9 Missing 0 Sysmiss 57 Modiifeid rankin at discharge Modiifeid rankin at discharge 149 19 7 Not applicable 8 Unknown 9 Missing Where is next appointment Write uu/uu/9999 if missing or uu/uu/8888 if no appointment scheduled When is the next appointment? 149 19 1 KCH 49 2 DYL 32 3 Area 25 19 4 No appoint scheduled 38 5 Partners in hope 1 6 Other,specify 10 9 Missing 0 Sysmiss 19 When is next appointment Write uu/uu/9999 if missing or uu/uu/8888 if no appointment scheduled When is the next appointment? 111 What is next appointment What is the next appointment? 111 57 1 Physiotherapy 51 2 Medication collection 23 3 Other, specify 3 4 OPD/GMC recheck 34 Sysmiss 57 Staff code Recorder: 168 0 Staff code Entry by: 167 0 Staff code Updated by: 27 0 Date of entry Date of entry 167 Date of Update Date of Update 27 Verified verified 137 31 0 No 25 1 Yes 112 8 Unknown 0 9 Missing 0 Sysmiss 31