HSS HIV sero survey DDI-MWI-MEIRU-HSS-2007-v01 Malawi Epidemiology and Intervention Research Unit Estelle McLean Chifundo Kanjala Jacky Saul Kieth Branson Dominic Nzundah 2020-05-25 Nesstar Publisher version 1 (May, 2020) HSS HIV sero survey DDI-MWI-MEIRU-HSS-2007-v01 Dr Neil French Dr Anna Molesworth Dr Alfred Phiri Dr Judith Glyn Mr Hazzie Mvula 2017-05-22 Nesstar Publisher Wellcome Trust, UK HIV testing Population Surveillance Malawi Chilumba Individual HIV testing Malawi Epidemiology and Intervention Research Unit Face-to-face [f2f] Malawi Epidemiology and Intervention Research Unit css_hssconsent1.NSDstat 72967 30 Nesstar 200801 Malawi Epidemiology and Interventions Research Unit css_hfup1.NSDstat 802 99 Nesstar 200801 Malawi Epidemiology and Interventions Research Unit Consent HSS Follow-Up Other Clinic related Awareness Health Transport / travel Lack of social support Other Membership of HIV support organisation Study identifier Study identifier 72967 0 version Version 72954 13 Old HSS study number Old HSS study number 54665 0 Ident Main unique identifier 72475 0 Origid Original ident discrete numeric 72475 0 contact number Contact number 72967 0 Reporting group Reporting group 72967 0 Cluster Cluster 72967 0 HH list number Household list number 72967 0 Member number Household member number 72475 0 Visitor in or out of CRS area Visitor in or out of CRS area 619 72348 1 In CRS 110 2 Out of CRS 478 3 Unidentifiable 1 4 There is a missing associated form 30 9 Missing 0 Sysmiss 72348 Old specimen set Old specimen set 30120 0 Round Round 72954 13 Consent to take part 59600 13367 0 No 3076 1 Yes 56524 8 Unknown 0 9 Missing 0 Sysmiss 13367 Consent to behavioural study v2 onwards 52822 20145 0 No 1426 1 ABS only 456 2 FIS only 14079 3 Both ABS & FIS 10809 4 Ineligible 6247 5 679 6 Later part of pilot without ABS 33 7 As a couple 19093 8 As an individual 0 9 Missing 0 Sysmiss 20145 Consent to PBS v5 onwards 21796 51171 0 No 3819 1 Yes 17977 8 Unknown 0 9 Missing 0 Sysmiss 51171 Consent to take blood 56524 16443 0 No 12845 1 Yes 43679 8 Unknown 0 9 Missing 0 Sysmiss 16443 reason for refusing to have blood taken I understand that my blood will be stored for possible later testing for other diseases related to HIV or of importance in Karonga District. I understand that further testing will only be done if approved by the Malawi Ministry of Health, and that I can choose at any time to have my stored blood destroyed. 12818 60149 1 No reason 1333 2 Family/community decision to refuse 566 3 Confused/incapable of consenting 50 4 Afraid of needles/fingerprick 530 5 Afraid for other reasons 943 6 Already tested and know status 5391 7 Thinks knows status 389 8 Prefers clinic 292 9 Does not think he/she is at risk 1849 10 Other 1475 Sysmiss 60149 Want HIV result 43679 29288 0 No 382 1 Yes 43297 8 Unknown 0 9 Missing 0 Sysmiss 29288 Consent to store blood 43679 29288 0 No 20 1 Yes 43659 8 Unknown 0 9 Missing 0 Sysmiss 29288 Subject seen? V2 onwards I AGREE to my blood being stored for later testing 68541 4426 0 No 13354 1 Yes 55187 8 Unknown 0 9 Missing 0 Sysmiss 4426 Interview date Date of interview 72956 recorder Recorder: 72954 0 coder Coder: 46157 0 checker Checker: 72953 0 Entry by Entry by: 72964 0 Update by Data updated by: 2599 0 Entry Date Date of data entry 72963 Update date Date data updated 2599 Verified Verified 72967 0 0 No 1 1 Yes 72966 8 Unknown 0 9 Missing 0 version Version 802 0 range 1:4 Interview date Interview date 802 01/11/2008 - current date Round Round 802 0 range 2:4 Study Identifier Study Identifier 802 0 valid STID or blank Contact number Contact number 802 0 valid CNO or old specset Old HSS study number Old HSS study number 590 0 valid HSS studyno sex Sex 802 0 0 Male 275 1 Female 527 8 Unknown 0 9 Missing 0 Current village Current village 801 0 valid code in val_village agree to the referral follow-up Does the client agree to participate in the HSS follow-up? 802 0 0 No 13 1 Yes 789 8 Unknown 0 9 Missing 0 ever referred to ART clinic v4 onwards Have you ever been referred to an ART clinic? If " No" skip to Q14a(atdclinic);Have you ever attended an ART clinic as a patient for screening (with or without a referral)? 193 609 0 No 15 1 Yes 178 8 Unknown 0 9 Missing 0 Sysmiss 609 This varaible should be entered if consent = 1 If Yes to (refeverchss);Have you ever been referred to an ART clinic? , How many times have you been referred? 178 624 range 1:9 When were you referred to the ART clinic the first time? And the last time (if (refnumb); If Yes to (refeverchss);Have you ever been referred to an ART clinic? , How many times have you been referred? >1)? 178 01/01/2000 – current date 1)?: Date estimate.]]> 152 650 1 Full date known 0 2 Day unknown 77 3 Month unknown 0 4 Day and month unknown 75 8 Not known at all 0 9 Missing 0 Sysmiss 650 If full date leave blank 1)? : Date estimate.]]> 43 01/01/2000 – current date or blank, Must be blank if No. of referrals = 1 When were you referred to the ART clinic the first time? And the last time (if (refnumb); If Yes to (refeverchss);Have you ever been referred to an ART clinic? , How many times have you been referred?>1)? : 40 762 1 Full date known 0 2 Day unknown 12 3 Month unknown 0 4 Day and month unknown 28 8 Not known at all 0 9 Missing 0 Sysmiss 762 If full date leave blank Did you tell anyone you had been referred to the ART clinic the first time? And the last time? 596 206 0 No 127 1 Yes 469 8 Unknown 0 9 Missing 0 Sysmiss 206 tell anyone you had been referred - first. v4 onwards Did you tell anyone you had been referred to the ART clinic the first time? And the last time? (first) 178 624 0 No 70 1 Yes 108 8 Unknown 0 9 Missing 0 Sysmiss 624 Did you tell anyone you had been referred to the ART clinic the first time? And the last time?(last if (refnumb); If Yes to (refeverchss);Have you ever been referred to an ART clinic? >1 ) 41 761 0 No 18 1 Yes 23 8 Unknown 0 9 Missing 2 Sysmiss 759 Must be blank if No. of referrals = 1 When were you referred to the ARV clinic 592 210 1 Last HSS 358 2 Other 224 8 Unknown 10 9 Missing 4 Sysmiss 206 Where were you told to go? 589 213 1 Mwayi 481 2 Buyu 57 3 Other 39 8 Unknown 12 9 Missing 7 Sysmiss 206 Where were you advised to go the first time? 178 624 1 Mwayi 155 2 Buyu 8 3 Other 13 8 Unknown 2 9 Missing 0 Sysmiss 624 40 762 1 Mwayi 34 2 Buyu 1 3 Other 5 8 Unknown 0 9 Missing 3 Sysmiss 759 Were you given advice on when to go the first time? And the last time? 594 208 0 No 76 1 Yes 510 8 Unknown 8 9 Missing 2 Sysmiss 206 Were you given advice on when to go the first time? 178 624 0 No 21 1 Yes 157 8 Unknown 0 9 Missing 0 Sysmiss 624 Were you given advice on when to go the last time? 39 763 0 No 1 1 Yes 38 8 Unknown 0 9 Missing 4 Sysmiss 759 Who issued the referral the first time? And the last time? 594 208 1 KPS 389 2 Health center 166 3 Other 36 8 Unknown 3 9 Missing 2 Sysmiss 206 Who issued the referral the first time? 177 625 1 KPS 126 2 Health center 44 3 Other 7 8 Unknown 0 9 Missing 1 Sysmiss 624 40 762 1 KPS 30 2 Health center 9 3 Other 1 8 Unknown 0 9 Missing 3 Sysmiss 759 Where was the referral issued? 590 212 1 At Household 356 2 Work 5 3 Health Centre 198 4 Other 31 8 Unknown 0 9 Missing 6 Sysmiss 206 Where was the referral issued the first time? 177 625 1 At Household 121 2 Work 3 3 Health Centre 45 4 Other 8 8 Unknown 0 9 Missing 1 Sysmiss 624 Where was the referral issued the last time? 39 763 1 At Household 29 2 Work 0 3 Health Centre 9 4 Other 1 8 Unknown 0 9 Missing 4 Sysmiss 759 Ever attended an ARV clinic Have you ever attended an ART clinic as a patient for screening (with or without a referral)? 789 13 0 No 275 1 Yes 514 8 Unknown 0 9 Missing 0 Sysmiss 13 If yes to (atdclinic);Have you ever attended an ART clinic as a patient for screening (with or without a referral)?,How many times have you attended an ART clinic for screening?? 112 690 When did you attend ART for screening the first time? And the last time (if (screnumb);If yes to (atdclinic);Have you ever attended an ART clinic as a patient for screening (with or without a referral)?,How many times have you attended an ART clinic for screening? >1)? 112 1)? : Date estimate.]]> 81 721 1 Full date known 0 2 Day unknown 46 3 Month unknown 0 4 Day and month unknown 35 8 Not known at all 0 9 Missing 0 Sysmiss 721 1)? : Last screening date.]]> 50 1)? : Last screening date;estimate.]]> 34 768 1 Full date known 0 2 Day unknown 26 3 Month unknown 0 4 Day and month unknown 8 8 Not known at all 0 9 Missing 0 Sysmiss 768 Where did you go v1-3 only 380 422 1 Mwabi 314 2 Buyu 45 3 Fulirwa 0 4 Nyungwe 0 5 Kaporo 0 6 Iponga 0 7 Unknown 0 8 Outside KD 0 9 Other 21 99 Missing 22 Sysmiss 400 Where did you go the first time? 112 690 1 Mwabi 95 2 Buyu 7 3 Fulirwa 2 4 Nyungwe 0 5 Kaporo 0 6 Iponga 0 7 Unknown 0 8 Outside KD 5 9 Other 3 99 Missing 0 Sysmiss 690 1).]]> 49 753 1 Mwabi 40 2 Buyu 2 3 Fulirwa 2 4 Nyungwe 0 5 Kaporo 0 6 Iponga 0 7 Unknown 0 8 Outside KD 1 9 Other 4 99 Missing 1 Sysmiss 752 Were you assessed v1-3 only Were you assessed? 381 421 0 No 8 1 Yes 373 8 Unknown 0 9 Missing 21 Sysmiss 400 Were you assessed (screened) the first time? 112 690 0 No 8 1 Yes 104 8 Unknown 0 9 Missing 0 Sysmiss 690 1]]> 50 752 0 No 0 1 Yes 50 8 Unknown 0 9 Missing 0 Sysmiss 752 If NO, why was this.v1-3 only If No to (assessed);Were you assessed?, why was this? 7 795 1 Didn't want to wait 2 2 Didn't like staff 0 3 Changed my mind 0 4 Went to wrong place 0 5 Left when seen 0 6 Other 5 9 Missing 22 Sysmiss 773 If Q14b(screnumb);If yes to (atdclinic);Have you ever attended an ART clinic as a patient for screening (with or without a referral)?,How many times have you attended an ART clinic for screening? ) =1 & Q17a(assessedf); Were you assessed (screened) the first time? =No, why weren't you assessed the first time? 6 796 1 Didn't want to wait 2 2 Didn't like staff 0 3 Changed my mind 1 4 Went to wrong place 1 5 Left when seen 0 6 Other 2 9 Missing 2 Sysmiss 794 1 & Q17b (assessedl); Were you assessed (screened) the last time? (if (screnumb);If yes to (atdclinic);Have you ever attended an ART clinic as a patient for screening (with or without a referral)?,How many times have you attended an ART clinic for screening?>1 =No, why weren't you assessed the last time?]]> 0 802 1 Didn't want to wait 0 2 Didn't like staff 0 3 Changed my mind 0 4 Went to wrong place 0 5 Left when seen 0 6 Other 0 9 Missing 0 Sysmiss 802 Eligible for ART. v1-3 only Were you found eligible ART for screening? 0 802 0 No 0 1 Yes 0 8 Unknown 0 9 Missing 0 Sysmiss 802 How many times have you been found eligible for ART treatment at screening? If = 0 SKIP TO Q 41(orgsupp); Are you currently a member of any organisation that supports people with HIV/AIDS? 112 690 Were you found eligible the first time you attended the clinic for screening? 27 775 0 No 11 1 Yes 16 8 Unknown 0 9 Missing 0 Sysmiss 775 3 799 0 No 0 1 Yes 3 8 Unknown 0 9 Missing 0 Sysmiss 799 worried about privacy/confidentiality rank. v4 onwards 8 794 worried about privacy/confidentiality 266 536 0 No 226 1 Yes 40 8 Unknown 0 9 Missing 9 Sysmiss 527 clinic hours not good, v1-3 only 186 616 0 No 155 1 Yes 31 8 Unknown 0 9 Missing 8 Sysmiss 608 clinic hours not good rank. v4 onwards 3 799 clinic hours not good. v4 onwards 81 721 0 No 76 1 Yes 5 8 Unknown 0 9 Missing 0 Sysmiss 721 taking traditional medicine rank. v4 onwards 1 801 taking traditional medicine 265 537 0 No 262 1 Yes 3 8 Unknown 0 9 Missing 10 Sysmiss 527 not believed rank. v4 onwards 3 799 not believed. v4 onwards 81 721 0 No 78 1 Yes 3 8 Unknown 0 9 Missing 0 Sysmiss 721 declined referral rank. v4 onwards 4 798 declined referral. v4 onwards 81 721 0 No 77 1 Yes 4 8 Unknown 0 9 Missing 0 Sysmiss 721 because you forgot rank. v4 onwards 1 801 because you forgot 266 536 0 No 261 1 Yes 5 8 Unknown 0 9 Missing 9 Sysmiss 527 forgot where or when to go rank. v4 onwards 5 797 forgot where or when to go 267 535 0 No 256 1 Yes 11 8 Unknown 0 9 Missing 8 Sysmiss 527 think ARVs dont work rank 1 801 think ARVs dont work 265 537 0 No 260 1 Yes 5 8 Unknown 0 9 Missing 10 Sysmiss 527 go to the clinic when you feel sick rank 42 760 go to the clinic when you feel sick 270 532 0 No 116 1 Yes 154 8 Unknown 0 9 Missing 5 Sysmiss 527 too sick to go rank. v4 onwards 1 801 too sick to go 263 539 0 No 259 1 Yes 4 8 Unknown 0 9 Missing 12 Sysmiss 527 think ARVs is dangerous rank. v4 onwards 3 799 think ARVs is dangerous 264 538 0 No 252 1 Yes 12 8 Unknown 0 9 Missing 11 Sysmiss 527 you need money to travel rank. v4 onwards 5 797 you need money to travel 265 537 0 No 229 1 Yes 36 8 Unknown 0 9 Missing 10 Sysmiss 527 4 798 265 537 0 No 232 1 Yes 33 8 Unknown 0 9 Missing 10 Sysmiss 527 too far a distance rank. v4 onwards 7 795 too far a distance 265 537 0 No 226 1 Yes 39 8 Unknown 0 9 Missing 10 Sysmiss 527 worried that family will find out rank. v4 onwards 11 791 worried that family will find out 265 537 0 No 222 1 Yes 43 8 Unknown 0 9 Missing 10 Sysmiss 527 7 795 265 537 0 No 227 1 Yes 38 8 Unknown 0 9 Missing 10 Sysmiss 527 you were forbidden rank. v4 onwards 0 802 you were forbidden 262 540 1 Spouse 4 2 Relative 0 3 Religion 0 4 No 258 8 Unknown 0 9 Missing 13 Sysmiss 527 you have been away from home rank. v4 onwards 3 799 you have been away from home 266 536 0 No 245 1 Yes 21 8 Unknown 0 9 Missing 9 Sysmiss 527 you have been too busy rank. v4 onwards 7 795 you have been too busy 266 536 0 No 227 1 Yes 39 8 Unknown 0 9 Missing 9 Sysmiss 527 currently a member of any organisation Are you currently a member of any organisation that supports people with HIV/AIDS? 273 529 0 No 263 1 Yes 10 8 Unknown 0 9 Missing 2 Sysmiss 527 This varaible should be entered if consent = 1 currently a member of any organisation. v4 onwards If Q 41(orgsupp) ; Are you currently a member of any organisation that supports people with HIV/AIDS?= Yes, please name the organisation. 2 0 recorder Recorder: 802 0 valid hcstaff in val_staff coder Coder: 472 0 valid hcstaff in val_staff, Must be entered for version 01 else must be blank checker Checker: 802 0 valid hcstaff in val_staff entry by Entry by: 802 0 update by Updated by: 66 0 entry date Date of data entry 802 update date Date data updated 66 verified Verified 802 0 0 No 0 1 Yes 802 8 Unknown 0 9 Missing 0